I’m not going to lie to you. Life has been super hard lately. Prepare for a lot of acronyms in this post. I have been fighting a battle since November with DDD (Department of Developmental Disabilities) and Magellan, the insurance company that covers behavioral health services for Jerilyn. We applied for an out-of-home placement called a RTC (residential treatment center) in November. Jerilyn’s psychiatrist suggested a TGH (therapeutic group home), which is a level below the RTC, mainly because he felt like there were a lot of kids in RTC’s who were really just delinquents, not children suffering from mental illness like Jerilyn.

FightABattleHowever, during the whole approval process with Magellan, their own doctor stated they would approve the TGH (still with me?? Therapeutic Group Home), but made a note that Jerilyn most likely would not be accepted into any because her needs are too intense. In the notes, their doctor said that a RTC would need to then be considered at that time, although likely with the same results. Yes…too intense for a TGH or RTC and the teams that works there, and they wonder why I’m struggling over here by my lonesome.

Fast forward to now and a million meetings I’ve had with our team, which includes people like her behavioral therapist, DDD Coordinator, Intensive Case Manager, Magellan representative, company doing the Functional Behavioral Analysis, the respite or habilitation company, and our Family Support Partner. We’ve had to move these to our large dining room table to fit everyone at this point!

Jerilyn is in desperate need of hospitalization again, but I’m not sure what to do. As an in-between service (“in-between” = the time it will take to get big wigs in each of the companies to develop an out-of-home placement solution) we are receiving a “wrap-around” care solution. This means behavior coaches will be coming in and out of my home daily to help with Jerilyn.

I really wish I had the freedom to write all of the things I really want to say, but I don’t, so I’ll just say pray for Jerilyn. She is in a very rough place. One of the main reasons we need to be in some type of residential care (that actually knows how to care for children like her) is because we need to undergo another med change and these can be brutal, both for her and then of course, for us.

She is in a place of asking to return to the hospital, which is a big indicator of how much help even she feels she needs. Please pray for wisdom and discernment for us. The hospital we usually go to has a SIX PAGE wait list to get in and I’ve heard that others in the area have the same right now. UGH!! Our country needs mental health reform!!!! They have thrown out the possibility of sending her out-of-state to a place more suited to her needs, which I am fine with, my main concern is getting the RIGHT placement to get her the help she needs and deserves NOW!

Next week, I will begin the process of contacting congressmen and senators in our state, trying to get them to make a call on Jerilyn’s mamabearbehalf. I’ve heard this can get things moving a little quicker. For some odd reason they don’t want the spotlight on their failures to provide adequate care for a child. :Pondering:   You don’t want to make Mama Bear mad because this Mama can fight when I need to. Having a psychopath for an ex will teach you how to not back down from a fight, if nothing else! I am fixin’ to reign down some terror if solutions don’t start appearing soon.

Let me try and at least end on a good note….Daniel is flying into town today and will be with us for a month which we so desperately need and have been looking forward to! Hopefully he brings some much needed peace in here as well. 🙂

 

2 thoughts on “Mama Bear Is Getting Ready To Roar!!

  1. Hello admin i see you put a lot of work in your blog’s content, i know how to make your blogging
    easier, do you know that you can copy any content from any site, make it 100% unique and pass copyscape test?
    For more info , just search in google – rewriter creates an unique article in a minute

Leave a Reply

Your email address will not be published. Required fields are marked *